The grieving mother

bereavedmothersday1It is not any more important of a day. It is not any harder. But it is a day for the bereaved mom to be remembered.

International Bereaved Mother’s Day was started by Carly Marie Dudly in Australia in 2010. It is one week before traditional Mother’s Day and is a day for any parent who has lost a child. This year it is next Sunday, May 6th. In particular it honors mothers who have lost a child through miscarriage, stillbirth, SIDS or any pregnancy or infant loss.

I became aware of this day through my support friends of FB.

I have comfort knowing I am not alone. No mother who has lost a child is alone.

Unfortunately there are many of us. We are together in our loss.

Some of us lost the dream of having a child, of watching a baby become a child, or a child become an adult.

Losing an adult child is not any easier or harder.

You see – they all are losses… a piece of you is gone.

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We all think about our missing child. Or children. We are never the same.

We may not cry daily but we miss our child every day. 

On this day I will remember these women. And I will give myself some grace.

I honor the strength it takes to continue on. 

 

 

“How are your kids doing Dr. Gold?”

There are times at work that I am asked how my kids are doing.  Not very often – but it just happened again this week.

Even though I practice in a small community not everyone knows that Nolan is gone.

I see now how much I shared of my personal life when I see families and they ask about my kids.

lisa work photo videoIf I am not at work I can share my loss. I can be a grieving mom. I can describe the  heartbreak of losing your child when he was looking so good and told you he was feeling better with his illness.

So I try to be very brief in my answer. “They are good” “They are getting older.” But sometimes the parent asks for more details…Your oldest- how is college going for him? What year is here? Is he still at Purdue? That is when I feel lost.

Do I tell them the truth?

It is these times that I wish I had the courage to say Nolan is gone. But I cannot say this without breaking down and crying. It is so difficult. I feel like I am lying when I don’t tell them.  But how can I drop a bomb like that? The parent is making pleasantries. If I could share I would. But really I need to focus on the reason for the visit and not bring up my personal life and loss.

Some day I will be able to talk about Nolan’s passing and not cry. And I hate crying out in public.  This past February I was part of a panel for a MOPS group discussing child loss. I had to practice my intro:

“Hello – My name is Dr. Lisa Gold and I have two children. One is 15 years old and one is forever 19.”

It took me a week practicing to say this without breaking down and sobbing. But I did it. I cried a bit during the discussion but less than I expected I would.

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Don’t get me wrong – I want to talk about Nolan. By talking about him I keep him close to me.

I would rather talk to someone about my good memories of him. His laugh. His smile. His love of his friends. I love hearing stories and memories about him.

This is better than telling a parent at my office that my son is gone and by suicide.

That is not what I want to remember of him.

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“I just felt like running”

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Before you reply ugh – I hate running-– please let me tell you why.

I was NOT a runner until about 5 years ago. Running was the last thing I would think of doing. But my friend Janet was preparing for The Beast- a boot camp run – and she wanted someone to run with her in training. We did a walk run program and before long I could run a mile straight! Then 2 miles, then 3….

I would have SO much energy after my Sunday morning run. I mean so much. The adrenaline from running made me so productive.

We do 5k runs in the area. Trail runs, 10k’s, obstacle runs. Runs in 2 feet of snow, thru mud or deep trails in icy water in March, or in the heat and humidity of a Midwest summer. warrior 2017 1

I say we because most of the time I run with someone or a group. 12983798_10209263154041457_2515486574873558387_oWe train together and talk. We talk a lot. So running is my way of connecting with my friends while taking time for myself and bonus! .. getting the cardio I need.

I love runs where I can cheer other people on. All finishers are celebrated. All kinds of people of all ages run. The fastest, the slowest… if you came and ran you accomplished something.

Before Nolan passed I did a lot of training for long runs. When I ran by myself I would think. I understand I was practicing a form of active meditation. The longer the run the more time you have to think right? I talked to God a lot during these training sessions.

We did the Indy Mini (half marathon) the last two years. One was pre-Nolan passing and the other post. The second one I REALLY talked to God a lot. I was a little slower than the year before but I enjoyed it so much more. I took in the people, the scenery around me and mostly I appreciated how I felt.

Running a long distance is a mind game. Many times your body wants to walk or just quit.

But your mind is the master of your body. And your mind is guided by your spirit. 

I lasted all 13.1 miles. Only walked a short time at mile 11 to take off a layer of clothing. Did not even stop running thru the water stations.

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This is my photo right before the finish. Look at my smile. I am smiling not only because I see the finish line but at that time I felt something.

I felt Nolan, my parents, my grandparents…. ALL my family and friends that have passed… I felt them pushing my legs and cheering me on. 

I wish I could describe how uplifting it was. I wish I could experience it again.

I don’t do long distance runs anymore – I am listening to my body and it tells me to keep going but not with long runs.

Just this past weekend I did two 5ks. (both rainy cold days – gotta love Midwest spring)  I am a bit slower, but moving with a purpose. Sometimes my mind is so tired from grief but I find if my body moves, maybe with a walk with a friend or a session of yoga.. I am rejuvenated.

I hope to keep running.

My House of Grief

I sometimes think of my grief as a place in my mind – my house of grief.

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I live my day to day life – with work and busyness and the routine- outside of this house.

But every morning I wake up – the second I am up – I am in my grief house and in it’s biggest room.

This is my missing Nolan room. I am in this room the most.

I have other rooms in my grief house.

I don’t go into the denial or shock room anymore. But I did in the beginning. The anger room is really small. I don’t go there much. I spent the first months in the searching room. I got some relief but unfortunately in my time spent there I found more questions than answers. I went into the depression room last year December and stayed there for a month or so. Didn’t mean to. But it happened. It was decorated for the holidays but that did not make me happy.

The room I hate the most in my grief house is the guilt room.

This is in the basement. I visit this room almost every day. I know all grieving moms go here often. Especially moms whose child died from suicide.

You know you don’t need to – and you shouldn’t – but you still do. 

Something calls to you from in that room. It tells you to come and waste your time and expend your energy. You enter and go through the same routine….

“I should have known. I could have stopped him. I failed him.  I should have fixed him – I have failed as a mother and a doctor. He is gone and it is all my fault.”

ermabombeck1But us grieving moms know the truth. We only know what our child allowed us to see or told us. We cannot read their minds. Even though we are mother we cannot say we knew our child completely and in those last moments of their lives. WE CANNOT BLAME OURSELVES. But we still do.

 

I try to get out of the guilt room as fast as I can.

The new relationships room is so good for my soul. It is where other grieving parents and friends are and I get my strength when I go in this room. Sometimes I get lost and find myself in the disorganization room. That happens a lot on my days off.  It pisses me off when that happens.

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The house can be confusing because the rooms constantly change in location. Sometimes you don’t know which room you are entering . It really does feel like you are losing your mind. Unfortunately the guilt room never moves .. it is always in the basement and it demands a visit too often.

 

Thank goodness I do not have a loneliness or isolation room in my house. Never found it and I don’t think I ever will.

The room I like most is the helping others room. It is sunny and warm and really makes me happy. It has become a room that is missing a wall and is open to my everyday life and my work life.  Thankfully it is a room in my house of grief that I spend more time in. This room is less and less hard to find. It does not move as much as it used to.

The missing room is where I end my day. It is where I think about Nolan, my parents, many other relatives and others who are gone. The list of people I am missing is growing. But they are all together in the best house ever- the House of the Lord.  I expect I have a great amount of time before I get to see this house.

I will wait.

 

 

For better, for worse

The worst happened. We lost a child.

So does this mean we are more at risk for divorce? Doing some research the data is not clear showing how much more at risk a marriage is after child loss. An often quoted statistic reports a 90% chance of marriage ending in divorce after losing a child. But more recent data shows the rate is not that high.

blessing-of-wedding-rings-wedding-rings-pictures-blessing-of-rings-for-weddings (1)Scott and I will be celebrating 25 years of marriage this next month.

When I look at our wedding photo I see the promise of hope, youth and naivety.

Our marriage was strong before Nolan left us. Of course we had our difficulties. We are still in love but we found ourselves busy in our jobs, being parents and trying to survive the chaos of life. We had our lives as husband and wife be low on the priority list.

Some things we do now in our life with grief:

  • We acknowledge we are grieving differently. I cry openly, I talk. A lot. He is quiet and rarely shares his thoughts. He does when he wants to.
  • He is my first source for comfort and sharing of thoughts. I often share with my friends and family how I feel. But at my lowest I go straight to him. He is heart-broken with me. He understands.
  • We do not blame each other. This is our biggest strength. How can I blame him or he I? We are not at fault for Nolan’s disease or his ending his life. Nolan made that decision. We each find ourselves trying to feel the guilt a parent has when their child takes his/her life. (that is another blog topic to come) We remind each other we are not to have guilt.
  • We allow each other space. Especially in the first months. I found I would want him to have the same feelings of grief as I would have – however I understood quickly that grief is individually experienced. Sometimes you do better alone for a bit then you come together.
  • We make each other laugh. Oh – how I love to laugh! Now more than ever. And he can make me laugh until I pee. 

 

When you look at how our lives are now and the strength we have with our grief, I can’t see this loss and trauma as a tearing apart of our marriage. It is rather a bond in the union of husband and wife, of being parents. WE lost Nolan – together.

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And aren’t the above practices what all married couples should try to do?

quotes-about-grieving-for-parent-19-quotes-quotes-for-grieving-parentsI plan to continue with Scott … if one believes the research, we can continue against the odds.

 

 

Scott plays the odds well (sometimes he benefits at the  Horseshoe) and I am rather lucky – so he says.

Down that road

I drive by the site where Nolan took his life almost every day.

missing-child-from-armsI drive down this road every weekday morning to get Sam to school. We tend to be late and it is the most direct way to school. When it happened there was no road there. A big dirt pile remains and that is around where it happened. For months I did not know details other than the general area. Many months after they put in the road I asked Scott to show me. You see he went to the site the day after. He said he had to. No way I could. I said I would I not even exit the subdivision that way.

Weeks later I got enough courage to take that exit near the site. I didn’t cry. I didn’t break down. Wow. I can do this. I am not paralyzed with grief.

When I go down this road I tend to look towards the dirt pile. I do not think of what happened there. His last act is not the summary of his life.

I look and I remember him. I remember his smile. His laugh. He had a great laugh.

I don’t know if Sam thinks about Nolan when we drive this road. Maybe… maybe not. His grief is so different than mine. Sam told me he was done grieving about two weeks after Nolan passed. He was fourteen when Nolan took his life. I think he will grieve not having his older brother when he is an adult.

 

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Someday the dirt pile will be gone. It will be part of someone’s front yard.

 

 

Life goes on.

 

 

I will still go down that road and think of Nolan.

I used to be in control… 546

controlPlease don’t think I am a control freak. I am not. I just need the well oiled machine of a working mom’s life to flow with as little trouble and minimal breakdown.

Up at 4:30am, back home at 10pm some call days.. many nights end with charting on the few outpatient visits I did not finish during office hours. Add meetings, your son’s school activities, “mom taxi” responsibilities….

Now put some grief into the picture.

Grief clouds your mind. Especially when you push it away for all your hours of work. In the beginning months it was hard to not cry at work. Your doctor should not cry about her personal life. When I am working I need to think about my patients and their care, not my loss. During the years of medical training you are in a culture where you do not show your fatigue, negative emotion or distress.  These are signs of weakness.  Especially as a woman in medicine. A grieving doctor? Do that on your own time. 

Now months after Nolan’s passing I have little difficulty in pushing my personal thoughts aside and attending to my responsibilities. It is my life and I enjoy my practice. I have purpose. I find my healing in helping others.

But when I go home I need to grieve. 

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I have so little free time. Who doesn’t?  I plan those precious hours or weekend days with productive to-dos. Grief is waiting for you… Sometimes things go as planned and other times… well the train derails by a photo of Nolan that pops up on my computer. Or a song on the radio. This triggers a grief attack. Ugh. Now I am a crying mess.

I know I need to cry. But when you can’t stop crying it sucks. And I have days of that. Sometimes my brain is a fog from grief. I can’t focus on anything I want or need to do. It is frustrating. I push a reset button with sleep (thankfully I sleep well most nights) and if it is a work day I push the grief away and tell my mind to focus and be in control.  I am slowly learning that grief cannot be scheduled. That I cannot always control it. 

 

Today marks 18 months since Nolan passed. 546 days.

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Nolan left home and lived on campus at Valpo U. Exactly one month later he took his life. I knew I had no control in his decisions as he was not under my roof and my watch.  We had to trust his decision. He said he was ready to try again.  I had faith that he was in God’s hands.

That is where he is now.

 

I am trying to find my balance of control in my life and my faith in God’s planthe veil of grief clouds my view at times.  So I continue on…

 

 

 

Present living

Thoreau quoteWhen the police and coroner told me Nolan was gone, time stood still.

For some of my grieving parent friends time remains at that heartbreaking moment.

I would never say I want to go back to that day and relive it. Even now I can feel the disbelief – “this is not happening, this is not happening” I said aloud over and over while I searched for Nolan’s last visit summary from the psychiatrist to show the coroner what meds he was taking. I just couldn’t think.

The weeks that followed Nolan’s death are not easy to remember with full detail. Anyone that has lived through a loss or shock to your life understands.  Bits of sleep you try to take with many hours laying in bed wondering how and why and what you missed or could have done differently. Day after day of little to no sleep and such high emotion and trauma puts your brain on overdrive.

But I do remember … the weeks after he died I had the gift of living in the moment.

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Those weeks that came after Nolan died I would wake up and only be able to have the goal of making it through the day. To think about the future was impossible. The past too painful.

I had to live in the moment to survive.

When you have your life turn completely upside down you look at things in a different light. I am unbelievably blessed to be in a practice where I was able to take as much time off as I needed. I have the best partners= friends at my practice who covered my office, my call and took care of ALL of my responsibilities. ALL OF IT.

All that responsibility, pressure, stress of work and Continue reading “Present living”

A new grieving life

To start my blog I want to share the poem I wrote the night before Nolan’s first Angelversary. Nolan took his life 9/19/2016. He is forever 19 years old. Since then I have awoken every morning to remember he is gone. 

I live my life now with the heavy coat of grief.

I continue my life as mother to my remaining son, wife, sister, pediatrician and friend to many.  

Thank you for joining me as I  continue serving God in my practice of medicine and still see the sunrise as a reminder that I  have HOPE.

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The promise of a new life 
Has the mother hold her newborn and smile
Dreams of the child’s future
Whispered in the baby’s ear
Childhood goes fleeting fast
The chaos of joy and learning and growth

We mothers plan and plan for the future
When the present is to be enjoyed 
As your child tells you “I love you “
For before you know it he is grown

Out of your view yet still on your mind
Oh how you wish he would listen and understand your
Advice and experience 
And you wish he would understand HOW MUCH YOU LOVE HIM
A love where you would give your last breath if it were to help him

Children grow and become young adults
Independent minds with souls taking flight
But life can bring pain and sometimes it is too much
Despite help it is just too much and
The love is shadowed by the pain
And the child makes the pain end…..

A spirit come back to HOME.
Where I will be someday
Someday I will join my child 
But until then I will let go
And LIVE – because that is what a mother does.

—– Lisa Gold